We’re excited to announce that HealthReady, the company at the intersection of blockchain technology and healthcare data, is live on the Hedera mainnet.
Healthcare data is considered up to 50 times more valuable than financial data. As a result, it is of the utmost importance that this data is high quality, within the control of the individual patient, and easily and securely distributed for research.
Leveraging the Hedera Consensus Service (HCS), HealthReady enables the verification of patient consent to access healthcare data, and patient-reported outcome verification and authenticity. Through the Hedera Token Service (HTS), HealthReady also has the $HR token its own token for incentivizing patient engagement.
Through the HealthReady platform, patients with rare diseases and conditions are empowered to make themselves discoverable for clinical research by accessing, managing, and having the right to consent to share their health data and participate in clinical research opportunities that could save their lives and those of their fellow patients.
By enabling users to control their healthcare data and opt in to participation in clinical trials, this enables HealthReady to increase both the diversity and size of pooled data - in turn increasing the overall quality of this data.
Alongside further demonstrating the benefits of the HCS for data integrity and the HTS for creating fungible tokens, HealthReady was picked up and showcased by Coinbase in its push to reflect the real-world utility of blockchain technology.
Clinical Research
Recruitment of patients for clinical trials is the single most significant industry challenge in healthcare. It takes substantial cost and time to find a diverse pool of qualified patients for a trial.
In the case of rare disease trials, the challenge is exacerbated because the potential pool of patients is much smaller, especially in trials revolving around children, where recruitment is even more complicated.
For clinical researchers, HealthReady provides a pool of willing and validated patients with quality health data that can make their clinical research design study and recruitment more efficient and effective for better research outcomes.
HealthReady’s latest project Is focused on helping parents and children with Neuroblastoma, a rare cancer mostly affecting children, to utilize their data to find and be found for clinical research opportunities to help contribute to a cure and/or have a therapy that can give them a better quality of life.
The platform puts the patient in the driver's seat. They are the ones who choose to access and enter their health data, consent to be found, and decide whether or not they want to pursue to participate in a clinical study.
“The intersection of healthcare and blockchain is one of the most compelling use cases for this emerging technology,” said Maria Palombini, a healthcare data privacy expert. “Through our work with The HBAR Foundation and Hedera, not only are we increasing the quality and privacy of healthcare data transactions, but most importantly giving new opportunities to help patients across the globe. We greatly look forward to this continued relationship pioneering a patient-driven healthcare system.”
Why Hedera?
In order to facilitate token incentivization, healthcare data integrity, and real-time reporting, HealthReady realized the necessity of distributed ledger technology (DLT).
As HealthReady plans to scale up with additional client research use cases and serve more underrepresented communities for novel drug development, they require a performant ledger.
Hedera, already trusted by global organizations, was the obvious choice to enable such a use case - achieving finality of consensus, and unmatched scalability.
“Neuroblastoma is a deadly and complex form of pediatric cancer, where availability of accurate, verifiable and consented patient health data is critical for connecting to appropriate and timely clinical research,” said Jim Nasr, Acoer CEO and Lead for The HBAR Foundation Privacy and Healthcare Fund. “With their neuroblastoma patient mobile app and researcher data portal, HealthReady is proving how Hedera can be used as an infrastructure for computational trust to innovate in this underserved area of clinical care by improving both the patient’s access to research and the quality of data available to researchers.”